We need to talk about AI and access to publicly funded data-sets | TechCrunch
we’re all, as individuals, used to getting Google freebies in exchange for sharing some of our data. But the thing is, the data trade off here — with the publicly funded NHS — is a rather different beast. Because the people whose personal data is being pumped into Google-owned databanks are not being asked for their individual consent to the exchange.
Patient consent has not been sought in either of the current NHS collaborations. In the Moorfields project, where the data is being anonymized (or pseudonymized), NHS information governance rules allow for data to be shared for medical research purposes without obtaining patient consent (although NHS patients can opt out of supplying their data to all research projects) — so long as the relevant Health Research Authority clears the project. And DeepMind has applied to be cleared access in this case.